{"id":44579,"date":"2022-07-22T18:43:57","date_gmt":"2022-07-22T15:43:57","guid":{"rendered":"https:\/\/sozbizde.com\/?p=44579"},"modified":"2022-07-22T18:44:38","modified_gmt":"2022-07-22T15:44:38","slug":"44579","status":"publish","type":"post","link":"https:\/\/arsiv.sozbizde.com\/index.php\/2022\/07\/22\/44579\/","title":{"rendered":"SMA\u2019l\u0131 \u00e7ocuklar\u0131m\u0131za dayan\u0131\u015fmayla hayat olal\u0131m"},"content":{"rendered":"

\u0130zmir B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Tun\u00e7 Soyer, pandemiden afete kadar her zor g\u00fcnde yeniden canlanan \u0130zmir Dayan\u0131\u015fmas\u0131\u2019n\u0131 bu sefer de SMA hastas\u0131 \u00e7ocuklar i\u00e7in g\u00f6reve \u00e7a\u011f\u0131rd\u0131. Tedavi bekleyen SMA\u2019l\u0131 \u00e7ocuklarla onlara yard\u0131m etmek isteyenleri \u201cbizizmir.com\u201d \u00fczerinden bulu\u015fturan bir kampanya ba\u015flatt\u0131klar\u0131n\u0131 duyuran Ba\u015fkan Soyer, \u201cDayan\u0131\u015fman\u0131n, sevginin g\u00fcc\u00fcyle SMA\u2019l\u0131 \u00e7ocuklar\u0131m\u0131za hayat olal\u0131m\u201d dedi.<\/span><\/p>\n

\u0130zmir B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Tun\u00e7 Soyer\u2019in pandemi, deprem ve ekonomik krize kar\u015f\u0131 ba\u015flatt\u0131\u011f\u0131 \u0130zmir Dayan\u0131\u015fmas\u0131, \u015fimdi de kal\u0131tsal bir kas hastal\u0131\u011f\u0131 olan SMA (Spinal Musk\u00fcler Atrofi) hastas\u0131 \u00e7ocuklar i\u00e7in umut olacak. T\u00fcrkiye, klinik denemelerde etkinli\u011fi tam olarak kan\u0131tlanmad\u0131\u011f\u0131 gerek\u00e7esiyle “gen tedavisi” niteli\u011findeki ilac\u0131 kar\u015f\u0131lamazken aileler ise bu tedaviyi alabilmek i\u00e7in kampanyalar d\u00fczenliyor. Gen tedavi maliyetleri \u00e7ok y\u00fcksek olan SMA hastalar\u0131na destek olmak i\u00e7in \u201cbizizmir.com\u201d sitesinde \u201cUmut ol, hayat ol\u201d sayfas\u0131 a\u00e7\u0131ld\u0131. Kampanyaya yurt i\u00e7i ve yurt d\u0131\u015f\u0131ndan kat\u0131lmak isteyenler SMA\u2019l\u0131 \u00e7ocuklar\u0131n \u0130BAN hesaplar\u0131na do\u011frudan para g\u00f6nderebilecekleri gibi SMS g\u00f6ndererek de destek olabiliyor. T\u00fcm operat\u00f6rlerden yap\u0131lacak ba\u011f\u0131\u015flar i\u00e7in 1 SMS 20 lira ve 5 euro.\u00a0 \u00a0\u00a0<\/span><\/p>\n

\u201cVicdanlar\u0131 yaralayan bu uygulama son bulsun\u201d<\/strong><\/span>
\n\u0130zmir B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Tun\u00e7 Soyer, SMA dayan\u0131\u015fmas\u0131n\u0131 sosyal medya hesaplar\u0131ndan duyurarak ba\u015flatt\u0131. Proje detaylar\u0131n\u0131 anlatan Ba\u015fkan Soyer, yurtta\u015flara seslendi\u011fi video mesajda \u015fu ifadelere yer verdi: \u201cBiliyorsunuz, SMA hastal\u0131\u011f\u0131n\u0131n pen\u00e7esinde \u015fifa bekleyen y\u00fczlerce \u00e7ocu\u011fumuz var\u2026 \u0130yile\u015fmeleri i\u00e7in gereken gen tedavisinin maliyeti \u00e7ok \u00e7ok y\u00fcksek ve ne yaz\u0131k ki SGK taraf\u0131ndan kar\u015f\u0131lanm\u0131yor. Elbette as\u0131l talebimiz, vicdanlar\u0131 yaralayan bu uygulaman\u0131n son bulmas\u0131d\u0131r. Zaman\u0131 gelince o da olacakt\u0131r. Ancak \u015fimdi hepimize d\u00fc\u015fen g\u00f6rev bu \u00e7ocuklar\u0131m\u0131za el birli\u011fiyle destek olmakt\u0131r.\u201d\u00a0<\/span><\/p>\n

\u201cL\u00fctfen\u2026 \u015eimdi el ele verelim\u201d<\/strong><\/span>
\n\u0130zmir\u2019de resmi kurumlardan izin alarak yard\u0131m kampanyas\u0131 a\u00e7an ailelerle, destek olmak isteyenleri Biz \u0130zmir uygulamas\u0131 \u00fczerinde bulu\u015fturduklar\u0131n\u0131 belirten Ba\u015fkan Soyer, s\u00f6zlerine \u015f\u00f6yle devam etti: \u201cBizizmir.com sitemize girip \u2018Umut ol, hayat ol\u2019 sayfam\u0131zda bu \u00e7ocuklar\u0131m\u0131z i\u00e7in a\u00e7\u0131lan banka hesap bilgilerine kolayca ula\u015fabilirsiniz. \u00d6n\u00fcm\u00fczdeki g\u00fcnlerde dayan\u0131\u015fmay\u0131 daha da b\u00fcy\u00fctmek i\u00e7in projelerimizi a\u00e7\u0131klayaca\u011f\u0131m. Haydi\u2026 L\u00fctfen\u2026 \u015eimdi el ele verelim\u2026 Dayan\u0131\u015fman\u0131n, sevginin g\u00fcc\u00fcyle SMA\u2019l\u0131 \u00e7ocuklar\u0131m\u0131za hayat olal\u0131m.\u201d\u00a0<\/span><\/p>\n

“Umut ol, hayat ol\u201d sayfas\u0131na nas\u0131l ba\u015fvurulur?\u00a0<\/strong><\/span>
\n\u0130htiya\u00e7 sahibi SMA hastalar\u0131yla destek olmak isteyenleri bir araya getiren dayan\u0131\u015fma projesinin \u00e7\u0131\u011f gibi b\u00fcy\u00fcmesi bekleniyor. Valilik’ten\u00a0kampanya izni alan\u00a0\u0130zmirli SMA hastalar\u0131n\u0131n \u201cUmut ol, hayat ol\u201d\u00a0 sayfas\u0131nda yer almalar\u0131 i\u00e7in mesai saatleri i\u00e7erisinde (0232) 293 96 81 numaral\u0131 hatt\u0131 arayarak \u0130zmir B\u00fcy\u00fck\u015fehir Belediyesi Sosyal Projeler Dairesi Ba\u015fkanl\u0131\u011f\u0131 Aile ve \u00c7ocuk Hizmetleri \u015eube M\u00fcd\u00fcrl\u00fc\u011f\u00fc\u2019ne ba\u015fvuru yapmalar\u0131 gerekiyor.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

\u0130zmir B\u00fcy\u00fck\u015fehir Belediye Ba\u015fkan\u0131 Tun\u00e7 Soyer, pandemiden afete kadar her zor g\u00fcnde yeniden canlanan \u0130zmir Dayan\u0131\u015fmas\u0131\u2019n\u0131 bu sefer de SMA hastas\u0131 \u00e7ocuklar i\u00e7in g\u00f6reve<\/p>\n","protected":false},"author":1,"featured_media":44581,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-44579","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel"],"_links":{"self":[{"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/posts\/44579","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/comments?post=44579"}],"version-history":[{"count":2,"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/posts\/44579\/revisions"}],"predecessor-version":[{"id":44582,"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/posts\/44579\/revisions\/44582"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/media\/44581"}],"wp:attachment":[{"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/media?parent=44579"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/categories?post=44579"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/arsiv.sozbizde.com\/index.php\/wp-json\/wp\/v2\/tags?post=44579"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}